Research Reporting Services
Links

ALL-KIDS: http://www.all-kids.org
Informs you how to sign up for "Off Treatment for Acute Lymphoblastic Leukemia." ALL_OFF is an unmoderated discussion and support group for parents whose children, aged 17 years and under, have completed treatment for acute lymphoblastic leukemia. Parents discuss topics such as diet and late effects among many other off-treatment issues. Members provide support, resources and their personal experiences.

Alliance For Lung Cancer Advocacy, (ALCASE): http://www.alcase.org
An organization dedicated to helping patients and family members deal with lung cancer. ALCASE offers a toll-free telephone support number and a quarterly newsletter.

Alternative Medicine Home Page: http://www.pitt.edu/~cbw/altm.html
Jumpstation for sources of information on unconventional, unorthodox, unproven, or alternative, complementary, innovative, integrative therapies.

American Brain Tumor Association: http://www.abta.org
Provides publications about brain tumors, support groups, as well as referral information. Helps to fund brain cancer research.

American Cancer Society: http://www.cancer.org
Offers numerous resources including printed materials, counseling for patients and their parents and information on lodging for people who may require treatment far from home.
Tel. 1-800-ACS-2347

American College of Surgeons: http://www.facs.org
Dedicated to improving the care of the surgical patient and to safeguarding standards of care in an optimal and ethical practice environment.

American Foundation for Urologic Disease: http://www.afud.org
Provides information and support for people with prostate cancer
Tel. 1-800-828-7866

American Kidney Fund: http://www.akfinc.org
Provides financial assistance to people that have kidney cancer, as well as other kidney disease. The Fund also helps patients find appropiate doctors and medical services.

American Liver Foundation: http://www.liverfoundation.org
Provides support and medical referrals for people with liver cancer and other liver diseases.

American Lung Association: http://www.lungusa.org
Offers smoking cessation groups, literature on lung disease, and promotes lung health.

American Pediatric Surgery Association: http://www.eapsa.org
A surgical specialty organization composed of individuals who have dedicated themselves to the care of the pediatric surgical patient.

American Self-Help Clearinghouse, Self-Help Sourcebook Online: http://www.mentalhelp.net/selfhelp
Provides current information and contacts for nationwide self-help groups as well as information concerning state or local self-help groups. Publishes a self-help source book.

Anthony Nolan Bone Marrow Trust: http://www.anthonynolan.org.uk
A leading research center and the United Kingdom register for potential donors. This site references other international BMT sites.

BMT Newsletter: http://www.bmtnews.org
All issues of the Newsletter are online; the book, Bone Marrow Transplants: A Book of Basics for Patients,as well as an extensive list of resources also are online.

Canadian Cancer Society: http://www.bc.cancer.ca
The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is to eradicate cancer and enhance the quality of life for people living with cancer. They provide leading financial support for cancer research and deliver community-based support programs and prevention information for all types of cancer.

Cancer Care: http://www.cancercare.org
A non-profit organization committed to helping people with cancer and their families. It provides a variety of services including counseling, education, referrals, publications, and financial assistance.

Cancer Hope Network: http://www.cancerhopenetwork.org
Support group for those undergoing chemotherapy and radiation therapy. Trained survivors offer one-on-one counseling.

Cancer Information Network: http://www.cancernetwork.com
Comprehensive Web site for cancer patients and their caregivers. News about cancer updated daily; instant access to treatment guidelines, medical databases and general information about all kinds of cancer.

Cancer Information Service: http://www.cancer.gov/newscenter
A nationwide service providing fast access to the latest cancer information for patients, family members and health care professionals. The information service is a program of the National Cancer Institute.

Cancer Links: http://www.cancerlinks.org
CancerLinks is proposing a new standard of organizing web pages using Library of Congress Classification.

Cancer Research Foundation of America: http://www.preventcancer.org
Offers educational programs that focus on early detection and prevention. Also disseminates newsletters, videos, public service announcements and CD-Roms.

Cancer Source: http://www.cancersource.com
The mission of CancerSource is to be the most comprehensive, accurate, and personalized source of cancer information and services available.

Cancer Survivors On Line: http://www.cancersurvivors.org
Cancer Survivors On Line offers cancer information, resources and support. It is designed for cancer patients, families, friends, and the professionals who treat them. It's created and maintained by cancer survivors willing to share their knowledge and experiences.

Cancervive: http://www.cancervive.org
Cancervive is a non profit organization founded by childhood cancer survivor Susan Nessim. Cancervive provides support, education and advocacy for survivors, families and the community.

Cancerweb Online Medical Dictionary: http://cancerweb.ncl.ac.uk/omd
One of the most complete medical dictionaries available on the World Wide Web.

Candlelighters Childhood Cancer Foundation: http://www.candlelighters.org
Their mission is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs and to support research so every child survives and leads a long and healthy life.

Candlelighters Childhood Cancer Foundation Canada: http://www.candlelighters.ca
A national, volunteer governed, charitable organization dedicated to improving the quality of life for children with cancer and their families.

Cansearch: http://www.canceradvocacy.org
A guide to cancer resources on the Internet from the National Coalition for Cancer Survivorship.

Chai Lifeline/Camp Simcha: http://www.chailifeline.org
National non-profit organization dedicated to providing support service programs to Jewish families. Some of the many services provided are medical referrals, support groups, respite program, negotiating insurance claims, financial aid, transportation, a kosher camp for children with cancer and more.

Children Hospice International: http://www.chionline.org
A group working to improve hospice care for children and advocating home care programs for children.

Children's Memorial Hospital: http://www.childmmc.edu
Children's Memorial Hospital is the place where kids come first.

Children's Memorial Research Center: http://www.childrensmrc.org
The mission of the Children’s Memorial Research Center is to generate new knowledge leading to advancements in the prevention, diagnosis and treatment of diseases that affect the development of children through adolescence as well as adult disorders that derive from them. The multidisciplinary teams of physicians, scientists, technicians, nurses and trainees are committed to making discoveries that will improve the lives of children and their families.

Choices of Dying, Inc.: http://www.choices.org
An organization formed to protect the rights of dying patients. Provides information that can help people prepare for end-of-life decisions. For information on living wills and medical power-of-attorney, see the home page and click on the link that says: "Advance Directives: State-Specific Documents".

Colon Cancer Alliance: http://www.ccalliance.org
Deeply committed to peer support in the form of a "buddies" program. The Alliance makes it possible for patients to talk one-on-one with survivors and caregivers.

Corporate Angel Network: http://www.corpangelnetwork.org
Provides free transportation (using corporate jets) to or from a hospital or treatment center for patients.
Tel 914-328-1313

Cure for Lymphoma Foundation: http://www.lymphoma.org
Provides support, including aid for patients, as well as education programs, including teleconferences, and a newsletter. Foundation also funds research projects and works closely with health care professionals.

CureSearch National Childhood Cancer Foundation (NCCF): http://www.CureSearch.org
CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group and the National Childhood Cancer Foundation through our shared mission to cure childhood cancer.

Dana-Farber Cancer Institute: http://www.dana-farber.org/pat/pediatric
Dana-Farber/Children's Hospital Cancer Care (DF/CHCC) is a 50-year-old partnership between Children's Hospital Boston and Dana-Farber Cancer Institute that delivers comprehensive care to children with and survivors of all types of childhood cancers.

Food and Drug Administration: http://www.fda.gov/cder/cancer
The FDA Oncology Tools web site contains a variety of information related to cancer and approved cancer drug therapies.

Gilda Radner Familial Ovarian Cancer Registry: http://www.ovariancancer.com
A project to collect data on the like between heredity and ovarian cancer. Provides general counseling, support groups and assistance with genetic screening.

Gilda's Club: http://www.gildasclub.org
Offers emotional and social support as a supplement to medical care. Coordinates a network of groups, lectures, workshops and social events in a non-residential, homelike setting.

Gillette Women's Cancer Connection: http://www.gillettecancerconnect.org
Provides women, their families, and friends access to people and resources needed to ease the journey through treatment of women's cancers. The Web site puts patients in contact with local support groups, articles and advice and also offers tips.

GroupLoop.org: http://www.grouploop.org
Web site for teens with cancer.

Healthfinder: http://www.healthfinder.gov
Hundreds of medical links.

Histiocytosis Association of America: http://www.histio.org
The goals of this organization include public and professional education, patient and family support and stimulation and support of research.

Hospice Link: http://www.hospiceworld.org
Maintains a computerized database of hospice programs throughout the United States.

International Association of Laryngectomees: http://www.larynxlink.com
The Association assists people who have lost their voice as a result of cancer. It provides education in skills needed by those who have undergone a laryngectomy. It also publishes educational materials and sponsors meetings.
Tel: 1-800-ACS-2345

International Cancer Alliance: http://www.icare.org
Dedicated to providing cancer information to patients and physicians. Has programs designed to bring patients in contact with top physicians from all over the world.

International Myeloma Foundation: http://www.myeloma.org
Offers information and services pertinent to the treatment and management of multiple myeloma.

Kids Konnected: http://www.kidskonnected.org
An organization serving children of parents with cancer. Maintains a 24-hour hotline that children can call with questions and concerns about their parent's illness.

Leukemia Research Foundation: http://www.leukemia-research.org
Helps to fund research. Through 18 local chapters, seeks to enrich the quality of life of those touched by the disease. Offers links to support groups and helps arrange financial aid for patients.

Leukemia Society of America: http://www.leukemia.org
Among various services offered: financial assistance, transportation to treatment centers, blood transfusions.

Locks of Love: http://www.locksoflove.org
A non-profit organization that provides hairpieces to financially disadvantaged children under the age of 18 suffering from long-term hair loss.

Look Good.... Feel Better: http://www.lookgoodfeelbetter.org
Helps cancer patients improve their appearance during treatment. Offers workshops with local chapters of the American Cancer Society
Tel: 1-800-395-LOOK

Lymphoma Research Foundation: http://www.lymphoma.org
Creates, promotes and supports high quality research resulting in more effective, safer treatments and the ultimate cure for lymphoma. The Foundation also provides a comprehensive slate of educational and emotional support programs for lymphoma patients and their families.

National Library of Medicine - National Institutes of Health http://www.nlm.nih.gov
The National Library of Medicine (NLM), on the campus of NIH in Bethesda, Maryland, is the world's largest medical library. It collects materials in all major areas of the health sciences and to a lesser degree in such areas as chemistry, physics, botany and zoology. The collections stand at 5 million items--books, journals, technical reports, manuscripts, microfilms, photographs and images. Housed within the Library is one of the world's finest medical history collections of old (pre-1914) and rare medical texts, manuscripts, and incunabula.

MEDSCAPE: http://www.medscape.com
Medscape is a free resource for Physicians, featuring Free CME (Continuing Medical Education), medical journal articles, MEDLINE, medical news, major conference coverage, and comprehensive drug information.

Multiple Myeloma Research Foundation: http://www.multiplemyeloma.org
Funds research, offers services and information on treatment and management of multiple myeloma.

National Association of Hospital Hospitality Houses: http://www.nahhh.org
Provides information on lodging and support available for families of patients receiving medical care away from home.

National Brain Tumor Foundation: http://www.braintumor.org
Provides patients and families with information they need to cope with their illness. Sponsors seminars and support groups; helps to fund research for more effective treatments.